Day 119

Well the past few days have brought many blessings for us and Bella. They surprised us with an extabation of the vent on Sunday morning. Bella has been holding strong with assistance from the cpap machine since then. She is being weaned from her nitric oxide for the pulmonary hypertension. She will be off by morning and hopefully the medicine will be sufficient this time. She is on 70-78 % oxygen. She is receiving a low dosage of steroids every 24 hours now. The Dr on this week says she will discontinue those after 7-10 days as she has had such a quick response that she feels it is hasty to say that she will need chronic (continous) doses just yet. We feel much better about this plan. If she starts rebounding after they stop then we will just start the process over. As the Dr says we are on Bella time & she (I prefer to think God) is writing her own story. So only time will tell. We are ecstatic and hopeful yet we learned the hard way not to get our hopes up just yet. She weighs 4 pounds and 6 ounces now. She is absolutely the cutest thing you have ever seen in her little outfits. They have also written the order to move her to a crib once she is off the nitric and one is available. She will hopefully leave her little home in the isolette sometime soon. She is enjoying crib toys & music now as she needs more stimulation as we get closer to her due date which is September 20th. I will be bringing in a swing this week to try out as well.

So we continue to watch, wait, pray and enjoy this time while we have it. And we trust that no matter what tomorrow brings God doesn't have a Plan B...

Much love to you all
Telisha