Well I spent the entire day yesterday whispering "I trust you Jesus" By about 5 pm I actually meant it...it was the longest, hardest day I have had in a long time. I felt instant relief when I was finally able to turn it over to Him again and renew my faith.
Bella has been on 95-100 % since going on vent. She is very tired & resting lots. She seems like she is feeling better. We are backed into a corner for treatment options. There are no other tricks or standard things they can do to try to get her off of the vent. The only options are to use more steroids for an experimental trial (which means she stays on them for an extended amount of time til she is off). We are heavily cautioned about this as they are controversial & have some side effects like mental retardation, stunted growth & makes her more subsceptible to infections. The other option is to do nothing, wait on her to grow & hope that she regenerates enough lung tissue for them to function. This option is highly unlikely as the ventilator destroys any new tissue that is regenerated & her lungs are so bad that they would probably not catch up.
We prayerfully choose the steroids. We feel again that nothing else matters if she can't breathe. Nothing else matters except one day bringing her home to love. Love unconditionally. We went into this with no expectations of a "perfect" outcome, this is the path that God has chosen for us. I feel with all of my heart that He has brought her this far for a reason, that she is ours. I just don't know how long it will take or what special needs she will have when we get there nor do I care. I just want to get there...
She has started the steroids today so I will keep you posted on her hopeful progress.
Much love to you all
Telisha
God Bless you Telisha. Our prayers are with you at this time as well as at all times. When you felt that instant relief God picked you up into his arms and carried you . He will continue to hold all of you close during this time. Bella is a fighter ,a soilder and an angel of God. She is tired and needs this bit of time to rest and heal and grow. We pray God breathes new life into her as well as strength. May he light this pathway with his All giving power and love. May the steroids do what they need to do to regenerate her lungs so she will soon be able to breathe on her own. If Bella has special needs let it be your will father that they are few. They are called "special" for a reason.A child with special needs is an extremely special child of God. They are his angels he allows us to care for, to love, to admire, and to see him thru them. Please Please father allow your angels in heaven to sit with Bella and her family. Allow the Cobbs to feel their present as they wrap their wings around ths entire family and sing to Bella only the sweetest of lullabys as she rests and heals by your power. God Bless Bella & the Cobb family and Bella's grandparents, aunts, uncles, cousins, friends and all whom have a hand in her care. Guide them daily and continue to walk with them at this time of Bella's healing. God bless the little children.
ReplyDeleteYou are doing all the right things and trust
ReplyDeletethat God will see all of you through. Sweet, precious Bella will grow stronger from your love.
My prayers continue for all of you. My love to you, Lee Ann