Well things change fast in the NICU, that cautiously optimistic remark I made in the last post is holding true. Yesterday Bella's progress started going backwards until last night she ended up on the cpap machine again for assistance breathing and back on nitric oxide for the pulmonary hypertension. I held her for 4.5 hours straight yesterday, we thought that may help. While it did for a little while it was no fix for her problems but sure did make me feel better. Most probably what we are experiencing now is a "rebound" from the steroids. She has been off for 9 days now and we were warned there could be a rebound period. So we are hoping that she does not rebound back to the ventilator and can hold tight on the cpap. She is on 95% oxygen now and we really need to see her under 85%. She has also slowed down on urine output and is retaining fluids which doesn't help with the breathing.
We continue with prayer and pouring every ounce of positive energy and love into her. We continue to remind ourselves that God walks before us, there are no surprises for Him so we must choose to believe that we are experiencing His plan. They tell you the NICU is a roller coaster, we have experienced that. But I am going with another preemie mom's description now: it is more like Chinese water torcher....There are no holidays in NICU but this too shall pass and we will pray our way thru.
Much love to all
Telisha
We'll say an extra prayer for you guys tonight. The setbacks are always hardest when they follow such great strides forward. I hope your rebound ends soon and Bella is able to avoid the vent!
ReplyDeletePrayers for Bella . Remember the bends in the pathway God has set before you ,They will become straight again and lead toward the most beautiful future known as the end of one Path that opens to the Great Valley Of Joy and happiness. Until then many prayers will be wrapped around Bella and her family till you reach the Valley .May our sweet and all powerful heavenly father reach within her body, heal her and give her the strength she needs to continue to travel down life's pathway. May he flush her of toxins in her kidneys and ease her breathing so she will soon be off the cpap and back in her mothers arms filled with love, hope and joy. God bless the little children and God bless Bella and her family and all whom you allow to aide in her care.
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