We have much to be thankful for this Sunday...Bella has been on 50% oxygen and lowered rates for a good part of the day today. She is responding to all forms of treatment. She has been diagnosed with moderate Pulmonary Hypertension which is still being treated with nitric oxide and there is a new string of bacteria in her breathing tube that is being treated with antibiotics. Most importantly she is responding to the steroids for lung improvement. We are uncertain which one of these exactly caused her to go downhill but treatment for all of it seems to be working now and we are moving forward. The timing for the care conference could not have been better, true to his word our Dr followed thru in a proactive fashion and we are so truly thankful for this. At the request of one of our incredible Primary Nurses he increased our holding schedule to 4 times a week and we have been able to snuggle for the past few days. It has been good for the heart and soul.
The boys are thankful for the sand between their toes, 2 hour naps and a boys trip to the beach without Mom's excessive planning. I am thankful that for a week I don't have to choose between children all day long, closet organization w/ no more wire hangers and for the reminder today at church that I am a child of God. Again we thank you for the continued prayers, we have a long road ahead of us but we are hopeful because when we are weak, He is strong....
Much love to you all
Telisha
I have missed reading about sweet baby Bella.
ReplyDeleteI have been praying and thinking about her and all of the Cobb family. I made a long trek by car to Denver to go with Mac to set up his apt for school there this year and just returned to Nashville. I am so happy to hear that the boys have gotten away to the beach and that mom and
Bella have more snuggle time together. I think that will add the healing touch that is needed.
"Everything is possible for him who believes."
Mark 9:23
Much love and strength to you Telisha,
Lee Ann
You hang in there Telisha. God is holding your hands and when you are overcomed with the emotions of this path he has chosen he WILL pick you up and carry you. Close your eyes T and feel the Power of God around you . Meditate dear day and night and feel the all powerful strength of our Lord renew and revive you . He is there day and night no matter where you are and he is listening to your words and hearing each one and will show himself to you thru the eyes of the angel that is laying in her little bed resting and getting stronger. When you hold her close breathe deep and smell the angels and God that are there with you . Keep your eyes closed and listen closely to the beautiful music Bella's heart plays for you on her monitor. Your senses will heighten far higher than you can imagine. So listen, smell and take in the joys God is giving you thru your beautiful little girl. He will see you thru this time along the pathway and he will be waiting at the end of it to welcome you and your little one home. Praise God for your strength Telisha he gives it freely and knows you have the deepest of love for your family and for him.He will reward you and your family beyond anything you could possibly imagine when this journey ends and the new one begins. I feel in my heart and soul it is going to be the most wonderful and beautiful experence yet. We continue our prayers for you and your family and Bella. We have hearts that will be overjoyed when we get to meet sweet Bella at last. God is love and he loves us all. God bless you and Chris and Dylan and little Bella and all who are allowed to assist with Bella's care. God Bless the Little Children.
ReplyDeleteSo glad for the good report!
ReplyDelete